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Meet our SKYTROFA
Caregiver Ambassadors

Real parents and caregivers like you

Our SKYTROFA Caregiver Ambassadors are real parents whose children have been diagnosed with pediatric growth hormone deficiency (GHD) and are taking SKYTROFA. See their inspiring stories about navigating their children's pediatric GHD diagnosis, treatment, and finding SKYTROFA.

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Montara and Blakelyn: Easing the Fear, Together

"What I appreciate most about the SKYTROFA auto injector design is that it was made with kids like Blakelyn in mind"

Montara and her husband, Joe, have three children. Their daughter, Blakelyn, was diagnosed with Pediatric Growth Hormone Deficiency (PGHD) at the age of five. Aware of Blakelyn's fear of needles, Montara expressed concern about the idea of daily injections. So when the doctors introduced SKYTROFA as an option, she chose it without hesitation, knowing that SKYTROFA's once-weekly injection would be a much better fit for their family's lifestyle.

Watch Montara's Story
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Tony and Ines: Two Homes, One Growth Journey

"SKYTROFA has fit into our family routine with just 15 minutes on Saturday mornings."

Tony's daughter, Ines, was diagnosed with Pediatric Growth Hormone Deficiency (PGHD) after he noticed she wasn't meeting her growth milestones. SKYTROFA has integrated smoothly into their routine. Ines lives in two homes, and the once-weekly injections help with logistics. Saturday is injection day for Ines, and the built-in flexibility to administer the dose up to two days before or after has made it easy to stay on track without missing treatments.

Watch Tony's Story
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Nicole and Tucker: Facing Injection Concerns

"When it was time for us to learn how to use it and actually do so, we were pleasantly surprised by how simple it was."

After a long road to diagnosis, Nicole's son, Tucker, finally started a daily treatment for GHD. However, both Nicole and Tucker experienced significant anxiety about his injections. When Nicole heard about once-weekly SKYTROFA, they talked with their doctor and decided to switch. The once-weekly schedule and ongoing support from the Ascendis Signature Access Program® (A·S·A·P) helped them face their injection concerns. Plus, they both found that the SKYTROFA Auto-Injector was easy to use. Now, they can focus more energy on tracking Tucker's growth progress.

Watch Nicole's Story
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Kylene, Sophie, and Isaac: Two Siblings With One Injection Day

"I am a firm believer in SKYTROFA and would like to share my experiences with others."

Kylene and her husband, Jeremy, have 2 children with GHD. Sophie was diagnosed just before her sixth birthday in 2016. Two years later, Isaac was diagnosed as well. For years, Kylene had to manage daily and weekly injection schedules while her children were on different therapies. Now that both Sophie and Isaac are taking SKYTROFA, Kylene sets a weekly alarm for their injections. This dosing schedule gives the whole family more flexibility.

Watch Kylene's Story
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Lezette and Christian: Finding Flexibility

"Not having to remember daily injections has been really helpful, especially since my son now has evening soccer practice 4 nights a week"

Lezette's son, Christian, an avid soccer player, suffered several bone fractures and a dip in his growth curve around age 7. After being diagnosed with GHD at age 11, he started on daily injections. Two years later, his doctor suggested trying once-weekly SKYTROFA. Now, Christian and his family can travel more easily to soccer tournaments with the flexibility of a once-weekly schedule and no need for refrigeration.

Watch Lezette's Story
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Mike and Kevin: Learning to Self-inject

"We settled into a routine with our sons injections. Being a weekly injection, we chose Friday evenings. He has been self sufficient with it for quite a long time."

At 10 years old, it became clear that Mike's son, Kevin, was falling behind on his growth curve. He was diagnosed with GHD. Shortly after starting daily injections, Kevin was able to switch to once-weekly SKYTROFA. Now, as a teen, he prepares and administers his own injections under the supervision of his parents. Once-weekly SKYTROFA gives him more freedom for sleepovers, traveling, and activities without daily disruptions. As a parent, Mike is proud to see Kevin take ownership of his treatment. He hopes that sharing their story will help other children do the same with their GHD treatment.

Watch Mike's Story
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Tracy and Vince: The Right Routine

"The weekly injection with SKYTROFA allows for us to center Vince's life and fit the medication and treatment around it versus the other way around."

Tracy's active preteen, Vince, was frustrated with being teased for his height prior to being diagnosed with GHD. After starting treatment, Vince became very anxious about the daily injections, to the point that he paused taking them. When SKYTROFA was FDA approved, Vince switched to the once-weekly injection after talking with their doctor. Now, he has been able to consistently stick to his routine. SKYTROFA has allowed Tracy and Vince to fit GHD treatment into their lifestyle.

Watch Tracy's Story
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Individual results may vary.
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Montara and Blakelyn: Easing the Fear, Together

"What I appreciate most about the SKYTROFA auto injector design is that it was made with kids like Blakelyn in mind"

Montara and her husband, Joe, have three children. Their daughter, Blakelyn, was diagnosed with Pediatric Growth Hormone Deficiency (PGHD) at the age of five. Aware of Blakelyn's fear of needles, Montara expressed concern about the idea of daily injections. So when the doctors introduced SKYTROFA as an option, she chose it without hesitation, knowing that SKYTROFA's once-weekly injection would be a much better fit for their family's lifestyle.

Tony and Ines: Two Homes, One Growth Journey

"SKYTROFA has fit into our family routine with just 15 minutes on Saturday mornings."

Tony's daughter, Ines, was diagnosed with Pediatric Growth Hormone Deficiency (PGHD) after he noticed she wasn't meeting her growth milestones. SKYTROFA has integrated smoothly into their routine. Ines lives in two homes, and the once-weekly injections help with logistics. Saturday is injection day for Ines, and the built-in flexibility to administer the dose up to two days before or after has made it easy to stay on track without missing treatments.

Nicole and Tucker: Facing Injection Concerns

"When it was time for us to learn how to use it and actually do so, we were pleasantly surprised by how simple it was."

After a long road to diagnosis, Nicole's son, Tucker, finally started a daily treatment for GHD. However, both Nicole and Tucker experienced significant anxiety about his injections. When Nicole heard about once-weekly SKYTROFA, they talked with their doctor and decided to switch. The once-weekly schedule and ongoing support from the Ascendis Signature Access Program® (A·S·A·P) helped them face their injection concerns. Plus, they both found that the SKYTROFA Auto-Injector was easy to use. Now, they can focus more energy on tracking Tucker's growth progress.

Kylene, Sophie, and Isaac: Two Siblings With One Injection Day

"I am a firm believer in SKYTROFA and would like to share my experiences with others."

Kylene and her husband, Jeremy, have 2 children with GHD. Sophie was diagnosed just before her sixth birthday in 2016. Two years later, Isaac was diagnosed as well. For years, Kylene had to manage daily and weekly injection schedules while her children were on different therapies. Now that both Sophie and Isaac are taking SKYTROFA, Kylene sets a weekly alarm for their injections. This dosing schedule gives the whole family more flexibility.

Lezette and Christian: Finding Flexibility

"Not having to remember daily injections has been really helpful, especially since my son now has evening soccer practice 4 nights a week"

Lezette's son, Christian, an avid soccer player, suffered several bone fractures and a dip in his growth curve around age 7. After being diagnosed with GHD at age 11, he started on daily injections. Two years later, his doctor suggested trying once-weekly SKYTROFA. Now, Christian and his family can travel more easily to soccer tournaments with the flexibility of a once-weekly schedule and no need for refrigeration.

Mike and Kevin: Learning to Self-inject

"We settled into a routine with our sons injections. Being a weekly injection, we chose Friday evenings. He has been self sufficient with it for quite a long time."

At 10 years old, it became clear that Mike's son, Kevin, was falling behind on his growth curve. He was diagnosed with GHD. Shortly after starting daily injections, Kevin was able to switch to once-weekly SKYTROFA. Now, as a teen, he prepares and administers his own injections under the supervision of his parents. Once-weekly SKYTROFA gives him more freedom for sleepovers, traveling, and activities without daily disruptions. As a parent, Mike is proud to see Kevin take ownership of his treatment. He hopes that sharing their story will help other children do the same with their GHD treatment.

Tracy and Vince: The Right Routine

"The weekly injection with SKYTROFA allows for us to center Vince's life and fit the medication and treatment around it versus the other way around."

Tracy's active preteen, Vince, was frustrated with being teased for his height prior to being diagnosed with GHD. After starting treatment, Vince became very anxious about the daily injections, to the point that he paused taking them. When SKYTROFA was FDA approved, Vince switched to the once-weekly injection after talking with their doctor. Now, he has been able to consistently stick to his routine. SKYTROFA has allowed Tracy and Vince to fit GHD treatment into their lifestyle.

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Montara
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Tony
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Nicole
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Kylene
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Lezette
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Michael
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Tracy

IMPORTANT SAFETY INFORMATION & USES

SKYTROFA is a prescription medicine used for:

  • the replacement of growth hormone in children 1 year old or older who weigh at least 26 pounds (11.5 kilograms) with growth hormone deficiency (GHD)
  • the replacement of growth hormone in adults with growth hormone deficiency (GHD)

Do not take SKYTROFA if:

  • you have a critical illness caused by certain types of heart or stomach surgery, trauma or breathing problems
  • you are allergic to somatropin or any of the ingredients in SKYTROFA

IMPORTANT SAFETY INFORMATION & USES

SKYTROFA is a prescription medicine used for:

  • the replacement of growth hormone in children 1 year old or older who weigh at least 26 pounds (11.5 kilograms) with growth hormone deficiency (GHD)
  • the replacement of growth hormone in adults with growth hormone deficiency (GHD)

Do not take SKYTROFA if:

  • you have a critical illness caused by certain types of heart or stomach surgery, trauma or breathing problems
  • you are allergic to somatropin or any of the ingredients in SKYTROFA
  • you are a child with closed bone growth plates
  • you have cancer or other tumors
  • you have certain types of eye problems caused by diabetes
  • you are a child with Prader-Willi syndrome who is severely obese or has breathing problems including sleep apnea (briefly stopping breathing during sleep)

Tell your healthcare provider if you are pregnant or plan to become pregnant, about all of your medical conditions, and about all the medicines you take. SKYTROFA may affect how other medicines work, and other medicines may affect how SKYTROFA works.

What are the possible side effects of SKYTROFA?

SKYTROFA may cause serious side effects, including:

  • serious allergic reactions. Get medical help right away if you have swelling of the face, mouth, tongue, or throat or trouble breathing
  • high risk of death in people who have critical illnesses caused by heart or stomach surgery, trauma, or serious breathing problems
  • increased risk of growth of an existing tumor or cancer, or increased risk of a previous tumor or cancer returning in people who were treated with radiation to the brain or head as children and who developed low growth hormone problems. Your healthcare provider will need to monitor for the growth or return of a tumor or cancer. Contact your healthcare provider if you start to have sudden changes in behavior, headaches, vision problems, or changes in moles, birthmarks, or skin color
  • new or worsening high blood sugar or diabetes. Your blood sugar may need to be monitored during treatment with SKYTROFA
  • increase in pressure in the skull. Contact your healthcare provider if headaches, eye problems, nausea, or vomiting occur
  • too much fluid in the body (fluid retention). Contact your healthcare provider if you notice swelling in the hands and feet, pain in the joints or muscles, or nerve problems that cause pain, burning or tingling in the hands, arms, legs, and feet
  • decrease in a hormone called cortisol. Your healthcare provider will do blood tests to check your cortisol levels
  • decrease in thyroid hormone levels. Decreased thyroid hormone levels may affect how well SKYTROFA works. Your healthcare provider will do blood tests to check your thyroid hormone levels
  • hip and knee pain or a limp in children (slipped capital femoral epiphysis). This may lead to a serious condition where bone tissue dies due to a lack of blood supply (osteonecrosis). Get medical help right away for children who develop a limp or have hip or knee pain
  • worsening of curvature of the spine in children (scoliosis)
  • severe and constant abdominal pain. This could be a sign of pancreatitis. Tell your healthcare provider about any new abdominal pain
  • loss of fat and tissue weakness in the area of skin you or your child inject. Talk to your healthcare provider about rotating the areas where SKYTROFA is injected
  • high risk of sudden death in children with Prader-Willi syndrome who are severely obese or have breathing problems, including sleep apnea
  • increase in phosphate, alkaline phosphatase, and parathyroid hormone levels in your blood. Your healthcare provider will do blood tests to check this

The most common side effects of SKYTROFA in children include: viral infection, fever, cough, nausea and vomiting, bleeding, diarrhea, stomach area pain, joint pain and arthritis

The most common side effects of SKYTROFA in adults include: swelling due to fluid build-up and low thyroid hormone

These are not all of the possible side effects of SKYTROFA. Call your doctor for medical advice about side effects. You are encouraged to report side effects to FDA at 1-800-FDA-1088 or at www.fda.gov/medwatch. You may also report side effects to Ascendis Pharma at 1-844-442-7236.

Please click here for SKYTROFA full Prescribing Information.

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